Aidan Update 6/3

Good morning dear friends~

Aidan remains at Children's. Thankfully, they have changed some of his medications and it seems to have helped a little in controlling his GI bleed.
We were able to breathe a tiny sigh of relief on Tues morning as it was relayed to us that the TWO results of his clotting times were incorrect (only 24 hrs later). They are, in fact, normal. However, this error, along with the fact that they also relayed a false hemoglobin count to us, painted a very poor clinical picture of Aidan. Quite scary and caused him an unnecessary visit to the ICU. I am beyond displeased with the manner in which things were handled and everyone of importance knows about it. I will say no more except that the people in the lab here are "special".

We had more excitement...on Monday night Aidan ripped out his PICC line (the central catheter in his arm for IV access). Good times. Apparently, he thought he didn't need it anymore. He was wrong and we had a visit to IR to have it replaced Tues morning.

Aidan will probably be here a few more days as he is back on a morphine pump for pain...the mucositis is back. It looks like his white blood cells are just starting to recover and once that happens, the mucositis is able to heal and his pain will subside.
He also spiked a couple of high fevers and is back on antibiotics. We are awaiting the results of his blood cultures.
It's never a dull moment here.

Thank you so much for all of your prayers and well wishes. I will keep you posted.